Health

Government Data Does Not Mean Data Governance: Lessons Learned from a Public Sector Application Audit

Nik Thompson, Ravi Ravindran, Salvatore Nicosia

Category Open Data Data Governance
Methodology Case Studies Conceptual Framework
Objective Legitimacy Privacy Security

Type journal-article

Region Australia

Sector Criminal Justice Health

Social Network Sites as a Mode to Collect Health Data: A Systematic Review

F. Alshaikh, F. Ramzan, S. Rawaf, A. Majeed

Category Citizen Engagement and Crowdsourcing Data Analysis
Methodology Comparative Analysis
Objective Effectiveness Participation

Type journal-article

Region Europe

Sector Health

Collective Intelligence in Patient Organisations

Lydia Nicholas, Stefana Broadbent

Category Expert Networking Collective Intelligence
Methodology Case Studies Conceptual Framework
Objective Participation

Type research-report

Region United Kingdom

Sector Health

The Open Data Era in Health and Social Care

Stefaan Verhulst, Beth Simone Noveck, Robyn Caplan, Kristy Brown, Claudia Paz

Category Open Data
Methodology Conceptual Framework
Objective Access Legitimacy Participation

Type white-paper

Region United Kingdom

Sector Health

Crowdsourcing medical expertise in near real time

Max H. Sims, Jeffrey Bigham, Henry Kautz, Marc W. Halterman

Category Citizen Engagement and Crowdsourcing Expert Networking
Methodology Case Studies
Objective Effectiveness Participation

Type journal-article

Region United States

Sector Health

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A New Source of Data for Public Health Surveillance: Facebook Likes

Steven Gittelman, Victor Lange, Carol Gotway Crawford, Catherine Okoro, Eugene Lieb, Satvinder S Dhingra, Elaine Trimarchi

Category Data Analysis
Methodology Statistical Modeling Quantitative Analysis
Objective Effectiveness

Type journal-article

Region United States

Sector Health

Codifying Collegiality: Recent Developments in Data Sharing Policy in the Life Sciences

G. Pham-Kanter, D.E. Zinner, E.G. Campbell

Category Open Data
Methodology Survey
Objective Access

Type journal-article

Region United States

Sector Health

Preparing for Responsible Sharing of Clinical Trial Data

Michelle M. Mello, Jeffrey K. Francer, Marc Wilenzick, Patricia Teden, Barbara E. Bierer, Mark Barnes

Category Open Data
Methodology Conceptual Framework
Objective Access

Type journal-article

Region United States

Sector Health

The Reliability of Tweets as a Supplementary Method of Seasonal Influenza Surveillance

A.A. Aslam, M.H. Tsou, B.H. Spitzberg, L. An, J.M. Gawron, D.K. Gupta, K.M. Peddecord, A.C. Nagel, C. Allen, J.A. Yang, S. Lindsay

Category Data Analysis
Methodology Quantitative Analysis
Objective Effectiveness

Type journal-article

Region United States

Sector Health

OpenFDA: an innovative platform providing access to a wealth of FDA's publicly available data

Taha A. Kass-Hout, Zhiheng Xu, Matthew Mohebbi, Hans Nelsen, Adam Baker, Jonathan Levine, Elaine Johanson, Roselie A. Bright

Category Open Data
Methodology Case Studies
Objective Effectiveness Participation

Type white-paper

Region United States

Sector Health

Using prizes to spur innovation and government savings

Derek Khanna

Category Citizen Engagement and Crowdsourcing Prizes and Challenges
Methodology Conceptual Framework
Objective Effectiveness

Type research-report

Region United States

Sector Health

Using Big Data to Understand the Human Condition: The Kavli HUMAN Project

Okan Azmak, Hannah Bayerrew Caplin, Miyoung Chun, Paul Glimcher, Steven Koonin, Aristides Patrinos

Category Data Analysis Big Data Smart Cities
Methodology Design Science Quantitative Analysis
Objective Effectiveness

Type journal-article

Region United States

Sector Environment Health

Beyond the Quantified Self: Thematic exploration of a dataistic paradigm

Minna Ruckenstein, Mika Pantzar

Category Small Data
Methodology Conceptual Framework
Objective Effectiveness Privacy

Type journal-article

Sector Health

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Flutrack.org: Open-source and linked data for epidemiology

Konstantinos Chorianopoulos, Karolos Talvis

Category Open Data Data Analysis
Methodology Design Science
Objective Effectiveness

Type journal-article

Sector Health

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Innovating for Healthy Urbanization

Roy Ahn, Thomas F. Burke, Anita M. McGahan

Category Data Analysis
Methodology Quantitative Analysis Qualitative Analysis
Objective Effectiveness

Type book

Sector Health

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Interdisciplinary Perspectives on Trust: Towards Theoretical and Methodological Integration

E. Shockley, T.M.S. Neal, L.M. PytlikZillig, B.H. Bornstein

Category Institutional Innovation Co-Creation
Methodology Conceptual Framework Comparative Analysis
Objective Legitimacy

Type book

Sector Politics Health Criminal Justice Science

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Advances in Crowdsourcing

Fernando J. Garrigos-Simon, Ignacio Gil-Pechuán, Sofia Estelles-Miguel

Category Citizen Engagement and Crowdsourcing
Methodology Conceptual Framework Case Studies
Objective Effectiveness

Type book

Sector Health Finance

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An Analysis of the Map Seeking Circuit and Monte Carlo Extensions

Zeynep Engin, Jeffrey Ng, Mauricio Barahona, Anil A. Bharath

Category Data Analysis
Methodology Quantitative Analysis Statistical Modeling
Objective Effectiveness

Type conference-proceedings

Sector Health

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Gradient Field Correlation for Keypoint Correspondence

Zeynep Engin, Melvin Lim, Anil A. Bharath

Category Data Analysis
Methodology Quantitative Analysis Statistical Modeling
Objective Effectiveness

Type conference-proceedings

Sector Health

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An Interdiscilinary Approach to Visual Pattern Detection: Biologically Plausible Pattern Localisation and Parameter Estimation on Visual Data

Zeynep Engin

Category Data Analysis
Methodology Quantitative Analysis Statistical Modeling
Objective Effectiveness

Type book

Sector Health

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Collaborative Innovation: Developing Health Support Ecosystems

Misturu Kodama

Category Co-Creation
Methodology Case Studies Conceptual Framework
Objective Effectiveness

Type book

Sector Health

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Citizen Science: The Law and Ethics of Public Access to Medical Big Data

Sharona Hoffman

Category Data Analysis
Methodology Comparative Analysis
Objective Access Participation Privacy

Type journal-article

Sector Health

Collective Intelligence Meets Medical Decision-Making: The Collective Outperforms the Radiologist

Max Wolf, Jens Krause, Patricia A. Carneyy Bogart, Ralf H. J. M. Kurvers

Category Collective Intelligence
Methodology Case Studies Quantitative Analysis
Objective Effectiveness

Type journal-article

Sector Health

Crowdsourcing Diagnosis for Patients With Undiagnosed Illnesses: An Evaluation of CrowdMed

Ashley N.D. Meyer, Christopher A. Longhurst, Hardeep Singh

Category Citizen Engagement and Crowdsourcing
Methodology Case Studies
Objective Effectiveness

Type journal-article

Sector Health

Ebola: A Big Data Disaster: Privacy, Property, and the Law of Disaster Experimentation

Sean Martin McDonald

Category Data Analysis Big Data Open Data
Methodology Conceptual Framework Case Studies
Objective Effectiveness Legitimacy Privacy

Type white-paper

Sector Health Crisis Response

Health Data Governance: Privacy, Monitoring and Research

OECD

Category Data Analysis Big Data Open Data
Methodology Case Studies Conceptual Framework
Objective Effectiveness Privacy

Type book

Sector Health

Making Open Innovation Ecosystems Work: Case Studies in Healthcare

Donald E. Wynn Jr., Renee M. E. Pratt, Randy V. Bradley

Category Citizen Engagement and Crowdsourcing Prizes and Challenges
Methodology Case Studies
Objective Effectiveness

Type research-report

Sector Health

Overcoming Barriers to Data Sharing in Public Health: A Global Perspective

Jussi Sane, Michael Edelstein

Category Open Data
Methodology Conceptual Framework
Objective Transparency Effectiveness

Type white-paper

Sector Health

The Promise and Perils of Open Medical Data

Sharona Hoffman

Category Open Data
Methodology Conceptual Framework
Objective Effectiveness Legitimacy

Type research-report

Sector Health

Towards Timely Public Health Decisions to Tackle Seasonal Diseases With Open Government Data

Vandana Srivastava, Biplav Srivastava

Category Open Data
Methodology Quantitative Analysis
Objective Effectiveness

Type conference-proceedings

Sector Health

Navigating the Health Data Ecosystem: The "Six C's": Understanding the Health Data Terrain in the Era of Precision Medicine

O'Reilly Media

Category Data Analysis Collective Intelligence
Methodology Conceptual Framework
Objective Effectiveness

Type research-report

Sector Health

Modernizing Informed Consent: Expanding the Boundaries of Materiality

Nadia N. Sawicki

Category Freedom of Information
Methodology Qualitative Analysis
Objective Legitimacy

Type journal-article

Sector Health

Medical Wikis Dedicated to Clinical Practice: A Systematic Review

Alexandre Brulet, Guy Llorca, Laurent Letrilliart

Category Citizen Engagement and Crowdsourcing
Methodology Comparative Analysis
Objective Participation

Type journal-article

Sector Health

Enabling Humanitarian Use of Mobile Phone Data

Yves-Alexandre de Montjoye, Jake Kendall, Cameron F. Kerry

Category Data Analysis Big Data Data Collaboratives
Methodology Case Studies
Objective Legitimacy Privacy

Type white-paper

Region Africa

Sector Health Crisis Response

Ebola: A Big Data Disaster

Sean McDonald

Category Data Analysis Big Data
Methodology Case Studies
Objective Legitimacy Privacy

Type research-report

Region Africa

Sector Crisis Response Health

Health Big Data in the Commercial Context

Center for Democracy & Technology

Category Big Data Data Governance Data Collaboratives
Methodology Surveys Conceptual Framework
Objective Privacy

Type white-paper

Sector Health

The Small World Initiative: An Innovative Crowdsourcing Platform for Antibiotics

Ana Maria Barral, Huda Makhluf, Nichole A. Broderick, Erika L. Kurt

Category Citizen Engagement and Crowdsourcing
Methodology Case Studies
Objective Effectiveness

Type journal-article

Sector Health

Tools Small World Initiative

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Screening for Pancreatic Adenocarcinoma Using Signals from Web Search Logs: Feasibility Study and Results

John Paparrizos, Ryen W. White, Eric Horvitz

Category Data Analysis Data Collaboratives
Methodology Statistical Modeling
Objective Effectiveness

Type journal-article

Sector Health

Fine-Grained Dengue Forecasting Using Telephone Triage Services

Nabeel Abdur Rehman, Shankar Kalyanaraman, Talal Ahmad, Fahad Pervaiz, Umar Saif, Lakshminarayanan Subramanian

Category Data Analysis Data Collaboratives
Methodology Statistical Modeling Design Science
Objective Effectiveness

Type journal-article

Region Pakistan

Sector Health

Crowdsourcing Biomedial Research: Leveraging Communities as Innovation Engines

Julio Saez-Rodriguez, James C. Costello, Stephen H. Friend, Michael R. Kellen, Lara Mangravite, Pablo Meyer, Thea Norman, Gustavo Stolovitsky

Category Citizen Engagement and Crowdsourcing Data Analysis
Methodology Conceptual Framework Case Studies
Objective Effectiveness

Type journal-article

Sector Health

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Enabling the Data Revolution: An International Open Data Roadmap

Category Open Data
Methodology Conceptual Framework Case Studies
Objective Effectiveness Legitimacy

Type research-report

Sector Agriculture Education Environment Health Development